Adding life to years MARCH 31, 2020 This year has been seriously difficult for everyone. COVID-19 has interrupted and in many cases ended life as we know it. As an NPO providing care and support to some of the sickest and vulnerable children in KZN, we continue to see the...
MARCH 5, 2020 Incompatible with life It’s trisomy 18 awareness month and recently been Rare Diseases Day, so I thought I would take the opportunity to share few patient stories. Trisomy 18, also known as Edward’s Syndrome and Trisomy 13, Patau Syndrome are both dreaded diagnoses. A child with these...
FEBRUARY 27, 2020 Hope vs Denial Isn’t hope a wonderful thing? It is part of the essence of the human condition. Some of you that are Facebook friends will know that we have had some bad luck lately; nothing too serious but our appliances, cars and other electrical goods have...
FEBRUARY 22, 2020 Religion – a double edged sword? Working with seriously ill children, we meet families from many different cultures and religions. One thing is abundantly clear; those with faith trust their God way more than they trust their health professionals. That said, I am often left wondering if...
FEBRUARY 4, 2020 #WORLDCANCERDAY2020 It’s already February and today is #WorldCancerDay2020. The theme is #IamandIwill. As a service we have had over 30 new referrals this year. But I want to talk about one particular young man that I had the privilege of meeting. His journey with cancer began 3...
