Adding life to years MARCH 31, 2020 This year has been seriously difficult for everyone. COVID-19 has interrupted and in many cases ended life as we know it. As an NPO providing care and support to some of the sickest and vulnerable children in KZN, we continue to see the true hardships of life and...
MARCH 5, 2020 Incompatible with life It’s trisomy 18 awareness month and recently been Rare Diseases Day, so I thought I would take the opportunity to share few patient stories. Trisomy 18, also known as Edward’s Syndrome and Trisomy 13, Patau Syndrome are both dreaded diagnoses. A child with these syndromes has an extra chromosome...
FEBRUARY 27, 2020 Hope vs Denial Isn’t hope a wonderful thing? It is part of the essence of the human condition. Some of you that are Facebook friends will know that we have had some bad luck lately; nothing too serious but our appliances, cars and other electrical goods have conspired to ensure a co-ordinated...
FEBRUARY 22, 2020 Religion – a double edged sword? Working with seriously ill children, we meet families from many different cultures and religions. One thing is abundantly clear; those with faith trust their God way more than they trust their health professionals. That said, I am often left wondering if religion is helpful or harmful....
FEBRUARY 4, 2020 #WORLDCANCERDAY2020 It’s already February and today is #WorldCancerDay2020. The theme is #IamandIwill. As a service we have had over 30 new referrals this year. But I want to talk about one particular young man that I had the privilege of meeting. His journey with cancer began 3 years ago. He was diagnosed...
WHERE SHOULD CHILDREN DIE? I hear you answer, they shouldn’t. They just shouldn’t die. But they do. More often than you would think. So back to the question… Where should children die? It has taken me a while to get down to writing this; it is enormously emotional topic for me. I have shed many...
APRIL 27, 2019 Happy freedom day! Happy Freedom Day! So happy it is weekend. My week started badly. Getting out my car to do a home visit, a Zulu woman greeted me warmly with, ‘hello fat lady’. She actually held out her arms to demonstrate just how fat! Apparently in Zulu culture it’s a compliment....
APRIL 9, 2019 Burning the laptop? I have just realised that this is the first time I have written this year. Oops, it is already April. I guess I am trying to work out where the time went? Or maybe I am just tired. People are tired. Emotionally drained. Aren’t you just so tired of...
I neglect my talents Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast of the Semantics, a large language ocean. A small river named Duden flows by their place and supplies it with the necessary regelialia. It...
I neglect my talents Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast of the Semantics, a large language ocean. A small river named Duden flows by their place and supplies it with the necessary regelialia. It...
